On 20th October 2011, Shine, previously known as the Association for Spina Bifida and Hydrocephalus officially relaunched itself with a new name and logo. Over 120 guests, many with the disabilities themselves, gathered at the launch event in Peterborough to celebrate the achievements and focus on the challenges ahead for people with spina bifida and hydrocephalus.
What does the future hold for you if you are born or live with spina bifida or hydrocephalus? Much more than it used to, and even more in the years to come says Shine, the rebranded and remodelled charity for people with these disabilities which held its official launch on Thursday (October 20th).
At its Cambridgeshire HQ Shine kicked off its bid to put these disabilities; which affect tens of thousands of people in the UK – on the map and redouble its efforts to prevent them.
Over 120 guests, gathered to celebrate the achievements and focus on the challenges ahead for people with spina bifida and hydrocephalus.
Among guests were David Proud, the actor with spina bifida who starred in EastEnders, Desperados and the Secret Diary of a Call Girl; and former England footballer Danny Mills who lost a baby son to spina bifida. Both are Patrons of Shine.
Members and parents will give moving presentations about their lives, their hopes for the future and what they want to see Shine achieve. Parent and carer Sam Copeland, who has a five year old daughter with spina bifida and hydrocephalus, performed the song ‘The Life that’s chosen me’ which was written to recognise the challenges of being a carer for a disabled child.
Messages of support and good luck for the new organisation that have been received from sister organisations from Spina Bifida all over the world were read out as the new Shine logo was formally unveiled by 13 year old Heather Harmer from Newbury who has hydrocephalus and eight year old Emma Hodson from York who has spina bifida.
The new Shine logo and image has already been widely welcomed as ‘bright, clear and positive’ by corporate supporters and the media according to Shine CEO Jackie Bland.
‘The issues we deal with have struggled to achieve a real place in people’s minds, despite the fact that spina bifida is something for which nearly every pregnant woman undergoes a scan. We are confident that with our new approach we will bring a higher profile and more benefits for the babies, children and adults we support day to day.’
For more information on Shine, go to shinecharity.org.uk
Posted by Emily Richardson